Clinic apt 5-20-15. I take all the kiddos with me to give Hannah a break. Haley was admitted for chemo 5-21-15 through 5-24-15. She got a two day break where she almost felt semi-normal except for her tummy hurt and she still didn't have an appetite. Since there was no school on Monday her friend Katie got to come and stay the night with her Sunday night. Our camper started leaking water. And we ended up with no heat because of it. Turns out the hot water heater is bad. After a week or so, Hans was able to get the heat back on, but the hot water heater will have to wait. Another clinic visit on 5-27-15. Another chemo admit on 5-28-15 through 5-30-15. We were discharged around 10:15 PM last night! None of these chemo treatments are a walk in the park but this particular weeks was really awful. It makes Haley feel so terrible. It doesn't seem to matter how many anti-nausea drugs that pump into her. She spends the whole time with her head over the puke bowl. It's really hard to see her suffering. Grandma Debbie had mercy on me and she stayed with Haley for the first two nights. Hans stayed with her the last night.
Today, 6-1-15, Haley has a physical therapy apt at 10 am. Tomorrow she has an apt with the surgeon where we get to tell her the surgery option we are choosing. (I'll save that for a post all it's own. - You are not even going to believe it!) She will not get chemo again for two weeks because this last round that she got will completely wipe out her immune system. They have to wait for it to come back before they give her the next round. In that two week time she will spend 5 of those days at the hospital for 6 different clinic apts. And God willing she will not have to be admitted because of a fever. And hopefully she will feel well enough to spend one of those days at the zoo.
Meanwhile, Hans and I grow more and more distant. I'm feeling like I REALLY need the support of my husband through all of this but he's simply not around. So in an effort to function, I just push him away because I can't rely on him for support. (I know...that's an unhealthy coping mechanism.) He feels stuck with NO good options. So off to work he goes...distant and miserable. If something doesn't change it will be a miracle if our marriage survives. We actually took about 45 minutes last night (thank you Molly & Ella for staying with Haley) to talk and share our frustrations with each other.
This journey has been so hard for me. I would never choose chemo for myself or my children. But here I am, forced to walk this road. And walking down this road without the support of my husband seems like more than I can bear. I feel very much like Peter. Jumped out of the boat and walking on water. And then stink, I looked away! I took my eyes off of Jesus! Now I'm sunk! But praise the Lord, "My flesh and my heart may fail: but God is the strength of my heart, and my portion for ever." Psalm 73:26 I may have sunk, but I won't be drowned. Jesus in Him great mercy, has reached down and saved me...again!
Monday, June 1, 2015
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment